On April 22, 2011, this introvert entered the blogging world to chronicle a day in the life as a father with children that have a chronic incurable disease called mitochondrial disease. As a novice blogger, I was clueless and my expectations were low. I found that telling my story was therapeutic for me. Since then, I have discovered that my blog has not only been therapeutic for me, but for others too who suffer. It has been educational for many who are on a similar diagnostic odyssey. Now, the goal of this blog is to be a source of hope, education, and solace for those who have rare diseases.
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Seth is now able to write letters. He made name tags for us on post it stickies
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On my second post, I wrote: "It's easy to write a blog when you know that you are the only one reading it." Since my silent and bashful entry into the blogging world, this blog has turned into something that I never expected. Each month, the number of pageviews continue to increase. Now, on average, there are 1300 - 1600 pageviews each month.
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| Seth getting his annual cardiology checkup. Heart is stable. |
I do not say this to boast or to boost my ego. I report these statistics because it tells me that mitochondrial disease is getting more awareness. People are learning about this disease. It tells me that I can make a difference, but I could not have done this without you! I continue to need you. I ask you to subscribe to my blog, share it with your friends by email or social media. September 15th - 21st is Mitochondrial Disease Awareness week. I've always believed that awareness is the first step in finding a cure. In the words of my little boy Seth in the video we recently posted: "Help us find a cure!" Thank you!!!
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| Me and Seth sporting our new glasses. He insisted our glasses be the same. |
#mitochondrialdisease #mitodisease
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